目的 调查发热性惊厥（febrile seizure,FS）患儿监护人的服务需求现状,并分析其影响因素,为制定针对性干预策略提供依据。方法 采用便利抽样法,选取2024年1—12月滁州市第一人民医院收治的218例FS患儿监护人为研究对象。使用自制FS患儿监护人服务需求问卷、广泛性焦虑量表-7、患者健康问卷-9及一般资料问卷进行调查。采用多因素Logistic回归分析监护人服务需求的影响因素。结果 监护人服务需求总分为（55.11±12.14）分,各维度得分从高到低依次为健康信息与教育（11.41±4.27）、家庭护理与后续管理（9.94±3.92）、随访与沟通渠道（9.51±3.40）、心理支持与情绪疏导（8.72±3.38）、急救与技能培训（8.55±4.12）和社会/经济支持（6.99±2.28）。多因素分析显示,患儿首次发作、住院治疗、复杂型惊厥、发热体温≥39℃、监护人女性及低学历是服务需求高的独立影响因素（P<0.05）。87.61%的监护人通过互联网/社交媒体获取健康信息,仅29.82%在入院前接受过正规健康教育。结论 FS患儿监护人对健康信息与技能培训需求最高,患儿病情严重程度及监护人性别、学历是主要影响因素。医疗机构应针对特定人群开展结构化健康教育,并加强线上权威信息供给。
Abstract
Objective To investigate the service needs of caregivers of children with febrile seizures (FS) and analyze the influencing factors, so as to provide a basis for formulating targeted intervention strategies. Methods A convenience sampling method was used to select 218 caregivers of FS children admitted to the Chuzhou First People's Hospital from January to December 2024 as the study subjects. A self-designed Caregiver Service Needs Questionnaire for FS Children, the Generalized Anxiety Disorder-7(GAD-7), the Patient Health Questionnaire-9(PHQ-9), and a general information questionnaire were used for investigation. Multivariate logistic regression analysis was employed to analyze the influencing factors of caregivers' service needs. Results The total score of caregivers' service needs was (55.11±12.14). The scores of each dimension, from highest to lowest, were: health information and education (11.41±4.27), home care and follow-up management (9.94±3.92), follow-up and communication channels (9.51±3.40), psychological support and emotional counseling (8.72±3.38), first aid and skills training (8.55±4.12), and social/economic support (6.99±2.28). Multivariate analysis showed that the child's first seizure episode, hospitalization, complex FS, highest fever temperature≥39℃, female caregiver, and lower education level were independent influencing factors for higher service needs (P<0.05).87.61% of caregivers obtained health information through the internet/social media, while only 29.82% had received formal health education before admission. Conclusion Caregivers of FS children have the highest demand for health information and skills training. The severity of the child's condition and the caregiver's gender and education level are the main influencing factors. Medical institutions should provide structured health education for specific groups and strengthen the supply of authoritative online information.
关键词
发热性惊厥 /
监护人 /
服务需求 /
影响因素
Key words
febrile seizure /
caregiver /
service need /
influencing factor
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基金
安徽省高等学校科学研究项目“奥司他韦与帕拉米韦治疗流行性感冒并发热性惊厥儿童的效果对比”（2023AH053286）
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