目的: 探讨复发精神分裂症患者家庭照顾者的生活质量水平及其相关影响因素,为精神分裂症患者的康复策略提供新的参考依据。方法: 通过整群抽样法,采用一般资料问卷、家庭照顾负担访谈量表（FBIS）和生活质量测定量表简表（WHOQOL-BREF）于2023年7月―2024年1月期间,对湖南省300名精神分裂症复发患者的家庭主要照顾者进行问卷调查,并对性别、年龄等18个因素进行深入研究,分析这些因素对复发精神分裂症患者的家庭照顾者生活质量的影响。结果: 复发精神分裂症患者家庭照顾者的生活质量得分为（59.60±9.20）分,其中心理领域得分最低（49.32±10.73分）,社会关系领域得分最高（56.49±9.17分）。Logistics回归分析结果显示,居住地（OR=1.868,95%CI：1.098~3.177）、与患者的家属关系（OR=12.697,95%CI：1.582~101.885）和照顾负担（OR=0.205,95%CI：0.122~ 0.342）是其生活质量的独立影响因素。结论: 复发精神分裂症患者的家庭照顾者的生活质量水平较差,居住地、与患者的家属关系和照顾负担对复发精神分裂症患者的家庭照顾者生活质量产生显著影响,应重视对精神分裂症患者的家庭照顾者的心理支持和情绪疏导,减轻家庭照顾者的照顾负担,从而提高其生活质量。
Abstract
Objective To explore the quality of life of family caregivers of patients with recurrent schizophrenia and its related influencing factors, so as to providing new reference for rehabilitation strategies for schizophrenia patients. Method A cluster sampling method was used to conduct a questionnaire survey on the primary caregivers of 300 patients with recurrent schizophrenia in Hunan Province from July 2023 to January 2024, using general information questionnaire, Family Care Burden Interview Scale (FBIS), and World Health Organization Quality of Life-BREF (WHOQOL-BREF), in depth research was conducted on 18 factors including gender and age to analyze the impact of these factors on the quality of life of family of their quality of life. Conclusion:The quality of life of family caregivers of patients with caregivers of recurrent schizophrenia patients. Results The WHOQOL-BREF score of family caregivers of patients with recurrent schizophrenia was (59.60±9.20), with the lowest score in psychological field (49.32±10.73) and the highest score in social relationship field (56.49±9.17). The logistics regression analysis results showed that, the place of residence (OR=1.868, 95%CI 1.098-3.177), family relationship with patients (OR=12.697, 95%CI 1.582-101.885) and care burden (OR=0.205, 95%CI 0.122-0.342) were the influencing factors recurrent schizophrenia is poor, with the lowest score in the psychological field. Residential area, family relationship with patients, and caregiving burden are factors that affect the quality of life of family caregivers of patients with recurrent schizophrenia.
关键词
精神分裂症 /
复发 /
家庭照顾者 /
生活质量
Key words
schizophrenia /
recurrence /
family caregivers /
quality of life
{{custom_sec.title}}
{{custom_sec.title}}
{{custom_sec.content}}
参考文献
[1] 黄兢, 唐慧, 伍海姗, 等. 精神分裂症疾病负担及药物治疗现状困境[J]. 中国药物经济学, 2022, 17(11): 16-21+26.
[2] CHARLSON FJ, FERRARI AJ, SANTOMAURO DF, et al.Global Epidemiology and Burden of Schizophrenia: Findings from the Global Burden of Disease Study 2016[J]. Schizophr Bull, 2018, 44(6): 1195-1203.
[3] 孙丹阳, 李侠. 我国精神卫生工作的社会史考察——前提、现状与社会认知[J]. 延安大学学报 (社会科学版), 2018, 40(02): 121-128.
[4] SIMEONE JC, WARD A J, ROTELLA P, et al.An Evaluation of Variation in Published Estimates of Schizophrenia Prevalence from 1990─2013: A Systematic Literature Review[J]. Bmc Psychiatry, 2015, 15(1): 193.
[5] CHEN L F, LIU J, ZHANG J, et al.Non-Pharmacological Interventions for Caregivers of Patients with Schizophrenia: A Meta-Analysis[J]. Psychiatry research, 2016, 235: 123-127.
[6] 姜钊, 张子旬, 崔倩, 等. 湖北省缓解期精神分裂症患者照顾者生活质量与照护负担的典型相关分析[J]. 医学与社会, 2020, 33(06): 34-37.
[7] 金军, 潘云菲, 陈浙丽. 老年痴呆患者主要照顾者照顾负荷现状及影响因素分析[J]. 实用预防医学, 2021, 28(6): 3.
[8] 冯辉, 曹新妹, 陈玉明, 等. 心理社会综合干预模式对精神分裂症患者家属生存质量的影响[J]. 中国健康心理学杂志, 2020, 28(04): 481-486.
[9] 韩丽. 综合干预对社区精神分裂症照料者生存质量的研究[D]. 济宁: 济宁医学院, 2021.
[10] 马娟, 丁宁, 丁木兵. 精神分裂症患者的治疗依从性影响因素分析及对生活质量和生活能力的影响[J]. 海军医学杂志, 2024, 45(05): 521-525.
[11] 姜钊, 张子旬, 崔倩. 湖北省缓解期精神分裂症患者照顾者生活质量与照护负担的典型相关分析[J]. 医学与社会, 2020, 33(6): 34-37.
[12] SHEEHAN D V, LECRUBIER Y, SHEEHAN K H, et al. The Mini-International Neuropsychiatric Interview (M. I. N. I.): The Development and Validation of a Structured Diagnostic Psychiatric Interview for Dsm-Iv and Icd-10[J]. J Clin psychiatry, 1998, 59 Suppl 20: 22-33; quiz 4-57.
[13] PAI S, KAPUR R L.The Burden on the Family of a Psychiatric Patient: Development of an Interview Schedule[J]. Br J Psychiatry, 1981, 138: 332-335.
[14] CHIEN W T, NORMAN I.The Validity and Reliability of a Chinese Version of the Family Burden Interview Schedule[J]. Nursing Res, 2024, 53(5): 314-322.
[15] MICK POWER, the WHOQOL Group. The World Health Organization Quality of Life Assessment (Whoqol): Development and General Psychometric Properties[J]. Soc Sci Med, 1998, 46(12): 1569-1585.
[16] WILLEM KUYKEN, the WHOQOL Group. The World Health Organization Quality of Life Assessment (Whoqol): Position Paper from the World Health Organization[J]. Soc Sci Med, 1995, 41(10): 1403-1409.
[17] STENTZEL U, VAN DEN BERG N, MOON K, et al. Telemedical Care and Quality of Life in Patients with Schizophrenia and Bipolar Disorder: Results of a Randomized Controlled Trial[J]. BMC Psychiatry, 2021, 21(1): 318.
[18] 郝元涛, 方积乾, Power MJ, 等. 生存质量评估简表的等价性评价[J]. 中国心理卫生杂志, 2006, (02): 71-75.
[19] CHAN S W.Global perspective of burden of family caregivers for persons with schizophrenia[J]. Arch Psychiatr Nurs, 2022, 25(5): 339-349.
[20] DEHGHANI A, KHORAMKISH M, SHAHSAVARI ISFAHANI S.Challenges in the daily living activities of patients with multiple sclerosis: a qualitative content analysis[J]. Int J Community Based Nurs Midwifery, 2019, 7(3): 201-210.
[21] 杜红梅. 甘肃省精神分裂症患者生活质量及家属生活满意度影响因素研究[D]. 兰州: 兰州大学, 2023.
[22] 王敬巍, 王永良, 刘晓丽. 精神分裂症患者生活质量和家属心理健康调查及防控对策[J]. 中国卫生工程学, 2020, 19(04): 545-547.
[23] 冯辉, 曹新妹, 陈玉明, 等. 心理社会综合干预模式对精神分裂症患者家属生存质量的影响[J]. 中国健康心理学杂志, 2020, 28(04): 481-486.
[24] MAGAÑA S M, RAMÍREZ GARCÍA J I, HERNÁNDEZ M G, et al. Psychological Distress among Latino Family Caregivers of Adults with Schizophrenia: The Roles of Burden and Stigma[J]. Psychiatric services, 2007, 58(3) 378-384.
[25] HAYA M A N, ICHIKAWA S, WAKABAYASHI H, et al. Family Caregivers' Perspectives for the Effect of Social Support on Their Care Burden and Quality of Life: A Mixed-Method Study in Rural and Sub-Urban Central Japan[J]. Tohoku J Exp Med, 2019, 247(3): 197-207.
[26] MORIMOTO T, SCHREINER A S, ASANO H.Caregiver Burden and Health-Related Quality of Life among Japanese Stroke Caregivers[J]. Age and ageing, 2023, 32(2): 218-223.
[27] DARRAGH A R, SOMMERICH C M, LAVENDER S A, et al.Musculoskeletal Discomfort, Physical Demand, and Caregiving Activities in Informal Caregivers[J]. J Appl Gerontol, 2015, 34(6): 734-760.
[28] PERKINS M, HOWARD V J, WADLEY V G, et al.Caregiving Strain and All-Cause Mortality: Evidence from the Regards Study[J]. J Gerontol B Psychol Sci Soc Sci, 2013, 68(4): 504-512.
基金
湖南省教育科学“十四五”规划2023年度课题终结性研究成果“基于学习共同体的中医护理人才队伍创新能力提升研究”（XJK23BGD014）
PDF(2163 KB)
